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Breast Cancer Family Registry

Young Women’s Study

We are recruiting women to join the Young Women’s Study, the newest expansion of the Breast Cancer Family Registry. Watch this brief video to learn more! 

Why young women?

Breast cancer incidence globally has been increasing among women under 40 years old. However, young women are not often included in cancer research studies in large enough numbers to be able to detect factors that may increase or reduce their risk of cancer.

The BCFR Young Women’s Study is the first major breast cancer research study with a specific focus on recruiting women under age 40. Over time, we will collect health information and biological samples that will be used to study how genes, lifestyle and our environment may be protective factors or risk factors for cancer in young women. We invite you to join the Young Women’s Study and become the next generation of women who will play a powerful role in our collective understanding of breast cancer!

 

What is involved?

New participants must complete an online e-consent form to enroll in the BCFR Young Women’s Study. Study participation involves the following activities. All aspects of the study are completely voluntary.

  • completing online questionnaires over time
  • providing a biological sample (saliva, blood, and/or urine)
  • using mobile phone apps to track your menstrual cycle and physical activity
  • if applicable, providing medical release authorization for your study site to obtain a copy of breast MRIs, mammograms, pathology reports and/or tissue from breast and ovarian surgeries

 

Eligibility Criteria

  • female
  • ages 18-39
  • relative of a member of the Breast Cancer Family Registry

 

Interested in joining?

If you are interested in joining the BCFR or have any questions about the study, please contact the research coordinating team at your relative’s BCFR site. If you are unsure which site your relative is a member of, please submit a message using the contact form.

If you are a current BCFR study participant and you would like to refer a young woman relative to join the BCFR Young Women’s Study, please contact the research coordinating team at your BCFR site.

 

Also on the BCFR Website:

Ongoing Grants

Find out more about our ongoing studies, such as the ProF-SC grant.

Publications

Read highlights from recent publications utilizing BCFR data.

Initiating Collaborations

If you would like to utilize data from the BCFR, please read our data sharing policies and contact us to initiate this process.

Funded by the National Cancer Institute (NCI), NIH, DHHS

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