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Breast Cancer Family Registry

Young Women’s Study

Between 2018-2023, we recruited participants to join the Young Women’s Study, an expansion of the Breast Cancer Family Registry. Watch this brief video to learn more! 

Why young women?

Breast cancer incidence globally has been increasing among women under 40 years old. However, young women are not often included in cancer research studies in large enough numbers to be able to detect factors that may increase or reduce their risk of cancer.

The BCFR Young Women’s Study is the first major breast cancer research study with a specific focus on recruiting women under age 40. Over time, we will collect health information and biological samples that will be used to study how genes, lifestyle and our environment may be protective factors or risk factors for cancer in young women. We invite you to join the Young Women’s Study and become the next generation of women who will play a powerful role in our collective understanding of breast cancer!

 

What is involved?

New participants must complete an online e-consent form to enroll in the BCFR Young Women’s Study. Study participation involves the following activities. All aspects of the study are completely voluntary.

  • completing online questionnaires over time
  • providing a biological sample (saliva, blood, and/or urine)
  • using mobile phone apps to track your menstrual cycle and physical activity
  • if applicable, providing medical release authorization for your study site to obtain a copy of breast MRIs, mammograms, pathology reports and/or tissue from breast and ovarian surgeries

 

Eligibility Criteria

  • female
  • ages 18-39
  • relative of a member of the Breast Cancer Family Registry

 

We recruited participants into the Young Women’s Study cohort between 2019-2023. If you are an enrolled participant and have any questions about the study, please contact the research coordinating team at your BCFR site. If you are unsure which site you are a member of, please submit a message using the contact form.

Also on the BCFR Website:

Ongoing Grants

Find out more about our ongoing studies, such as the ProF-SC grant.

Publications

Read highlights from recent publications utilizing BCFR data.

Initiating Collaborations

If you would like to utilize data from the BCFR, please read our data sharing policies and contact us to initiate this process.

Funded by the National Cancer Institute (NCI), NIH, DHHS

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